Jaxson Dahl, Waiting For the Gift of Life
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He has been awaiting his transplant for two years...
Jaxson Dahl was born 10 weeks premature on April 25, 2013, with a birth defect called gastroschisis. Gastroschisis leaves an opening in the abdominal wall, which leaves intestines and other organs exposed while in utero. When Jaxson was born, all but 12 centimeters of his small intestine had to be removed. This left him with a condition called short bowel syndrome. Due to the lack of small intestine Jaxson cannot digest food. He instead relies on IV nutrition (TPN) via a broviac (central line) for nutrition. He has been in and out of the hospital quite a bit in his four years of life and has undergone numerous medical procedures. He needs a multi-visceral transplant (small intestine, liver and pancreas) to be able to eat normally. He has been awaiting his transplant for two years. I have created a blog, mainly as an outlet for me to be able to write everything down & keep family updated. You can view it at www.JaxsonsGotGuts.wordpress.com.