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Jaxson Dahl, Waiting For the Gift of Life

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He has been awaiting his transplant for two years...

Jaxson Dahl was born 10 weeks premature on April 25, 2013, with a birth defect called gastroschisis. Gastroschisis leaves an opening in the abdominal wall, which leaves intestines and other organs exposed while in utero. When Jaxson was born, all but 12 centimeters of his small intestine had to be removed. This left him with a condition called short bowel syndrome. Due to the lack of small intestine Jaxson cannot digest food. He instead relies on IV nutrition (TPN) via a broviac (central line) for nutrition. He has been in and out of the hospital quite a bit in his four years of life and has undergone numerous medical procedures. He needs a multi-visceral transplant (small intestine, liver and pancreas) to be able to eat normally. He has been awaiting his transplant for two years. I have created a blog, mainly as an outlet for me to be able to write everything down & keep family updated. You can view it at www.JaxsonsGotGuts.wordpress.com.

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April 8th, 2024 | Linda Dahl |

This is my grandson Jaxson 4 years ago during a pandemic he got his transplant . It was a multivis . He received large and small intestines, stomach and pancreas. This was his 2nd go round as the first one in 2018 did not take. This boy right here has been through so much in his short lifetime. He was born with gastroschethis and had his first surgery right after birth. They took all but 18inches of his intestines. He lived in TPN for years until 2020 when he received the gift of life I pray for the donor family everyday because as they lost their little one he gave life to ours. Jaxson is thriving today and we have the transplant team at UPMC Pittsburgh to Thank as well as the donors family This is Jaxson today holding a picture of himself just after his transplant God is good all the time

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